Development of the American College of Rheumatology's Patient-reported Outcome Quality Measures for Systemic Lupus Erythematosus

Arthritis Care Res (Hoboken). 2024 doi: 10.1002/acr.25301. Epub ahead of print.

Expert workgroup members and patient partners recommend that clinicians assess depression and physical function at least once yearly in all people with SLE. Additional patient reported outcome measures addressing cognition and fatigue can also be assessed.

This study aimed to develop quality measures related to PROM use for SLE clinical care. Investigators also suggested that future studies should seek to incorporate PROM-based quality measures into the ACR’s RISE registry.