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Showing 2 results for “Clinical care”.

September 2025

EULAR recommendations for a core dataset to support clinical care and translational and observational research in systemic lupus erythematosus

Ann Rheum Dis 2025:0;1−11 Doi: 10.1016/j.ard.2025.07.001

The presented clinical core dataset and its research extension are designed to improve SLE patient care and facilitate collaborative research by ensuring the comparability of datasets and cohort descriptions. The aim of this EULAR taskforce by Mucke et al. was to define a core set of essential items for the comprehensive care of SLE patients in clinical practice, with an extension for vital elements required for translational and observational research.

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February 2024

Development of the American College of Rheumatology's Patient-reported Outcome Quality Measures for Systemic Lupus Erythematosus

Arthritis Care Res (Hoboken). 2024 doi: 10.1002/acr.25301. Epub ahead of print.

Expert workgroup members and patient partners recommend that clinicians assess depression and physical function at least once yearly in all people with SLE. Additional patient reported outcome measures addressing cognition and fatigue can also be assessed.

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